Doing the Friday Dance

It's Friday. It's time to shake off the funk I've been feeling and put the week behind me. It's time to finally do what my gma tells me to do. Give myself a big hug and look at what I have accomplished.

It's hard. Hard to really acknowledge that I had a hand in doing something positive. I don't lie when I say I'm hanging in there. I am really just hanging in there. I struggle everyday to find a balance between patience, carefree parenting and "wow could you just leave alone for 5 minutes?" And lately I've been in a serious mommy burn out funk.

But tonight I followed my gma's advice. After allowing a later than usual summer like evening, I watched. I watched my kids smile and learn. I watched them play in a way they weren't able to before. I looked around and saw what I had manage to accomplish. Not without help of course.

In a few short months we had managed to create a whole new life and almost settle into it like it's been our lives forever.







In just a few short weeks I have taken the advice of another mom whose son also has down syndrome (you can find her blog here ) & worked really hard on meeting Sean where he is. Yes yes I'm still pushing him to reach new heights, but not with the same hardcore vanity I once was.

I'm pretty sure that boy is mocking me, but I can't prove it. He knows how heavy he is getting & that I'd really like him to walk. I'm pretty sure he's running laps at night in his crib.





Let me tell you that it's been so hard for me not to get frustrated. I know he can do it, but he can't. Does that even make sense? I know that it's the path from the brain to the feet that gets Sean every time and I feel powerless to help him figure it out. If you know me you know how much I love to feel powerless.

I'll post an Early Intervention, therapy, what is Sean doing now? post shortly.