Disclaimer: I'm going to rant. I'm going to spill it right here. If you're going to be sensitive, claim I'm bashing anyone, boohoo at me or anything else.... don't bother. If you don't like it or don't wanna "hear" it, don't keep reading.
I have been hypothyroid (Hashimoto's) for years. Years. (That's important) I had bloodwork done in NYC and brought it down here to my new dr. He didn't like my TSH numbers saying they were to high and not in the newly recommended 1-2 range. So he increased my Synthroid. He said I should come back for my follow up 6-8 weeks so we can see how I was doing.
Today was that follow up. The day started out like any other. Me barely able to keep my eyes open because I hardly slept the night before. Kids demanding everything under the sun like little gaitling guns firing off their rounds.
The exceptions... instead of snoring, it was the "did I hear something or someone come in the door?" The sound of the heater turning on. The searing pain in my ears that felt like someone shoving a qtip in to hard. Meredith waking up because she'd had a bad dream. Sean waking up WAY to early because he had decided not to nap in favor of falling asleep to early.
I dropped the kids off at school and headed off to my dr's appointment. I waited & then did the triage. Dr walks in and we discuss my ears. They look good. Pain is probably coming from the brewing sinus infection causing congestion. Don't even get me started.
How am I feeling otherwise? "Well doc... my wrists hurt. Which I find odd. And I'm tired, but that's because I haven't been sleeping. And... I'm always cold. Always. I don't know if it's because my thyroid is acting up or if I was just kind of expecting it to be warmer down here compared to NYC."
He feels around.... "Your thyroid does feel full. We'll check all the thyroid hormone levels. Not just the TSH."
But...... lets talk about this fatigue. Oh yes.... Lets. Lets discuss it. PPPppppppppppllllllllllllleeeeeeeeeeeeaaaaaaaasssssssssssssssseeeeeeeeeeee.
He says there are two types of fatigue. Mental and physical. He thinks I told him I was tired in relation to the thyroid. And so to disprove that (or so I assume) he says, "Having a child with special needs is stressful. Very stressful. It's perfectly normal for a woman in your position to feel stressed."
Now here's the thing about having a child with special needs. IT"S NOT STRESSFUL!!!! Sean is a typical 2 year old.
Wanna know what's stressful? A son who can't seem to rid himself of a medication resistant bacteria and doctors who proclaim that "this" antibiotic is going to finally do the trick. Except that their miracle cure has already been tried. They'd have known that if they had bothered to read the notes THEY wrote.
Stressful is spending every waking minute looking at, doing something for, arguing with or any of the other numerous things that can be placed here for my children and then having them end up in my bed that night with their feet touching me. It's not that I don't love my children and don't wanna comfort them. It's just that I'm tired of seeing them. Mommy needs a little down time too.
Stresful is knowing that there are 2 major holiday parties coming up in a few days and I'll probably be taking my kids alone. Stressful is knowing that my incredibly shy daughter will be stuck to my leg and grunting at people who try to say hi while my son tries to take off at full speed through the crowd.
Stressful is having a dog who was just treated at the vet for God knows what and thensome poop in your house on your freshly scrubbed floors and your son discovering it. Oh yeah fun times. Or a dog who hurts his damn foot the day before Thanksgiving. My dogs are high maintenance. Lets leave it at that.
Stresful is not having consistent help or any cooperation.
I could seriously go on & on. At the end of the day, I smile. I smile through it all because complaining to anyone is not worth it. It doesn't change anything. I watch my kids & devise new ways to try to outsmart them. HA! At the end of the day I find my silver lining.
So Doc goes on to say that we need to start looking into healthier eating. Yes.... healthier eating would be nice. I'm already eating healthier than I was. My new nickname is granola. Healthier eating also doesn't change the circumstances surrounding our lives.
We should also discuss exercise. Doc... I have a 2 year old & a 4 year old. I get more exercise in a day than you probably get in a year.
Maybe.... you need to talk to a therapist or clergy. Immerse yourself in religion or yoga.
Um... I know why I'm tired. I don't snore. I'm in relative good health. My husband snores. I'm a light sleeper. My husband hasn't been home at night. I am always sleeping with one ear cocked to the world to make sure we're safe.
My kids... barely make it through a night without waking up. My son... would sleep clear through 13 hours if his ears didn't hurt & his nose wasn't congested, but drs.... have so far been unable to help clear that up. And so we see dr after dr. Ya know why? Not because he has special needs.... but because we have relied on buttheaded drs to help us and all they've seen is a kid with down syndrome who "gets sick more than other kids because of it" AAAAAAAAAAAAAAAAAAAAHHHHHHHHHHHH
My 4 year old is afraid of the dark & says she has bad dreams. She in turn comes to wake me up.
Broken sleep = tired the next day. 1+1=2 It has nothing to do with special needs you dingbat! Wake a chick up at night and she'll be tired in the morning.
So yeah... I need to talk to someone. My travel agent. I need a few days by myself on the quiet shores of some deserted island where there is no one demanding anything, no schedules to be maintained, no dogs that stink the place up, etc. A sandy shore where I can just breathe. And maybe drool. But definitely breathe.
I told the dr that my mental fatigue has been there for a long time. That's nothing new. I have figured out ways to calm the mind for bed. And I always manage to get out of bed & keep going. Physical fatigue is a direct result of my not sleeping the last few weeks. Cure my kid and help the other one realize that the dark isn't so bad.... Then we've got the makings of a good night's sleep. Help the husband not snore? HA! Even better.
He finally agreed that my fatigue was just the result of broken sleep and said "I'm not ruling out biomedical causes..." There's no biomedical cause. I just need some unbroken sleep. "We'll have your results tomorrow." He made me feel like my thyroid issue was completely made up and that I haven't been dealing with it forever. He's the one who wanted me to come in for a follow up. He's the one who upped my synthroid because he didn't like my numbers. I didn't. I got my bloodwork from my old dr and went about my merry way.
Don't tell me my fatigue is because I have a child with special needs. The drs give me more stress than he ever will. Well... short of the broken computers he's been leaving around.

I can't stand the Down syndrome excuse for illnesses either, and that doctor sounded annoying too. Sorry you're having a rough time. My kids are 2,4,and 6. I can tell you that the scared of the dark thing gets better and comes and goes in phases. My 6 year olds room is the only one in our basement, so we've bad issues with that. There are times I ,et her come up, but if she starts doing it night after night, I try to stop it. I either take her right back to her room, or she has a consequence the next day for sleeping in my bed. She loses something, like tv. We also have a toddler mattress that we put on the floor, so if she's sleeping in here when she's sick, she sleeps on that.
ReplyDeleteThank goodness it gets better. She was doing so well with the sleeping. Last night was probably the worst night in a loooonnnngggg time. I was really hoping that once Rob's project is finished & he's home at night again, that she'll finally relax again.
DeleteDrs make me insane. And I'm finding thatthe drs down here hate being asked "Why?" Hate it. But if you're going to treat my son for something, I wanna know why you're doing what you're doing.
You may be exhausted but you haven't lost your sense of humor! 'A sandy shore where I can just breathe. And maybe drool. But mostly just breathe.' :)
ReplyDeleteI can relate to the 'kids in your bed at night' part. Our kids did the same thing. For months. Finally I'd had it. In the middle of the night I stormed into Sharaya's room, grabbed her mattress off the bed and tossed it into the living room. "IF YOU'RE NOT GOING TO SLEEP IN YOUR BED, WE'LL GET RID OF IT!!! The middle of the night. She was three. No sleep does something to a mom!
As far as being scared of the dark, we hung a string of Christmas lights in Beth's room. She loves them! They stay up year round.
Um, I can relate to pretty much everything you wrote here, so I feel for ya!!! I'm glad you actually ranted on here, it was good for me to know some one else out there battles these types of things.
ReplyDeleteOh, and the "Special Needs" child being exhausting and stressful is such bullshit! My seven year old causes me more stress than Russell ever has in the three years he has been here!! lol...*sigh*...Sometimes Doctors are just idiots!
I do hope you start to feel better though and find any medical reasons that may be causing you to feel this way.