Pictures & Updates

Can you believe that my baby, who was diagnosed with "down's disease" and "Failure to Thrive" gained 8oz in a week? Good weight gained is defined as gaining an ounce a day. I'd say that Sean fits that bill. Take that Dr. F. And he made that gain with a taste of cereal. Literally a taste and no formula. Woot woot!

We decided to start him on cereal. It's really hit or miss at this point. Some days he doesn't get any at all. We're doing it more for a taste and to get his tongue moving. He also got a taste of some banana. Mmmmmm My boy loves to eat. I finally got an eater. Yay!!




 












Sean's feeding therapist gave him a knobby tube to chew on & he loves this thing. I've ordered a few for him. He's now able to bring things up with one hand, grab it with the other & then stick it in his mouth. It's amazing to watch him. Some days he's not real interested in doing anything except laying like a latke, but then there are others where he's so engaged. I just don't get it.




 









Lately I have been so discouraged by his delays. It's really hard for me to remember what Meredith was doing at Sean's age. And it's so hard to know I'm working so hard to help him keep up and I see no progress. Well that's not true. I do see progress, but it's soooooooooooo slow. I'm also at a loss for what's actually helping him. Is he doing something simply because he suddenly was able to or because of my hard work? Probably both, but................

We went to PA this passed weekend. It was nice to see some friends. It was also nice to go out without the kids. The only thing that stunk was that Meredith was traumatized that we left and we paid for it the rest of the weekend.

That coupled with hosting Thanksgiving dinner and our bout with food poisoning the weekend before was not a good mix. I was beyond exhausted and almost delusional by Saturday night.

Saturday morning we had brunch with friends and the kids got to see each other. We went to the same cafe we'd been to last summer, but being inside wasn't the most conducive to allowing the kids to run around. Oh well. Live & learn. Next time we get together during the winter we'll have to do it at someone's house so the kids can run around like caged tigers.



Then we shopped & by Saturday night I crashed. I went to sleep early & Rob was kind enough to let me sleep when the kids got up. I really needed it.

Sunday we woke up and played with the little people that ema has in her house from when Rob & his brother were small.



Then I went for a walk with Meredith. I can't believe how big she's getting. She's such a little girl now and not a baby at all. She talked about the leaves, trees, clouds, fish and about how sharks live in the ocean. She told me that there were no oceans by ema's house. And she was right. There are no oceans in the mountain. When did my kid get so smart?

We kicked rocks and picked up leaves. We watched the water in the stream go by and we talked about the animals that live on the mountain. We talked about the things we'd do during the upcoming week and then we walked back to the house and got ready to come home. We can't wait for our friends to come to Brooklyn so we can show them our stomping grounds.